One in two million.

Those are the odds of having a child with Fibrodysplasia Ossificans Progressiva (FOP).  My sweet daughter, Sienna, was diagnosed at age 2 on May 30th, 2012.  That is a date that I will never forget.  That is the date that I became a rare mom.

This is my personal blog about our life with FOP – there will be happiness, sadness, and hope.  Lots of hope.

Thanks to the work of a great team of doctors and researchers and families who have fundraised for years before us, effective treatments are closer than ever before.

Please share our message and help us find a cure at http://donate.ifopa.org/Sienna