One in two million.
Those are the odds of having a child with Fibrodysplasia Ossificans Progressiva (FOP). My sweet daughter, Sienna, was diagnosed at age 2 on May 30th, 2012. That is a date that I will never forget. That is the date that I became a rare mom.
This is my personal blog about our life with FOP – there will be happiness, sadness, and hope. Lots of hope.
Thanks to the work of a great team of doctors and researchers and families who have fundraised for years before us, effective treatments are closer than ever before.
Please share our message and help us find a cure at http://donate.ifopa.org/Sienna