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March 2, 2017 by raremom - 1 Comment

Rare Disease Day

February 14, 2017 by raremom - 0 comments

Regular Problems

February 7, 2017 by raremom - 3 Comments

When You’re Rare… Prepare!

January 1, 2017 by raremom - 0 comments

Puppy New Year

September 11, 2016 by raremom - 2 Comments

Becoming a Person

July 30, 2016 by raremom - 0 comments

Working “Vacation”

May 30, 2016 by raremom - 0 comments

4 Years of F.O.P.

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Recent Posts

  • Welcome Alex Part 3: Rare Plus One
  • Welcome Alex Part 2: Hello, Alex!
  • Welcome Alex Part 1: Miracle Baby!
  • Black Ice
  • Bravo for Bravery!
  • Getting Into (and Out Of) The Sling of Things
  • Fractured Bone, Spirit Intact
  • Rare Disease Day
  • Regular Problems
  • When You’re Rare… Prepare!

Recent Comments

hellonatashao on Rare Disease Day
raremom on When You’re Rare……
Tiffanie Williams on When You’re Rare……
hellonatashao on When You’re Rare……
Shalini on Becoming a Person

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